NDF Summary
We are a non-profit organization whose goal is to find a cure of neuromuscular diseases, including Hereditary Inclusion Body Myopathy (or HIBM).
HIBM is a rare and debilitating form of muscular dystrophy that dehabilitates young adults, robbing them of their ability to walk. While the recessive form is most common in Middle Eastern Jews, HIBM can affect anyone; and there is NO known cure.Support NDF today and help us move more quickly toward development of an effective treatment.
Are You A Carrier?
Hereditary Inclusion Body Myopathy is a genetic disease that is found in all communities but is most common among people of Middle Eastern Jewish Heritage.
HIBM is a progressive degenerative disease that causes the arm and leg muscles to slowly stop working. As a result of the identification of the gene that mutates into HIBM, a painless cheek swab of saliva allows us to test for HIBM, which results in an essential tool in genetic counseling. However, there is currently no cure for HIBM.
June 5, 2008 Fundraiser
Get Involved...
On behalf of the Neuromuscular Disease Foundation, we would like to express our deepest gratitude to everyone who attended and generously supported our fund-raising event on June 4, 2009 at the Beverly Hills Hotel. It was a real success.
It has meant the world to us to see your tremendous outpouring of support for NDF.
NDF would also would like to thank all of our sponsors and volunteers who made the event possible.
Sincerely, The Board of Directors of NDF
Note: Event photos to be posted shortly.
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